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Our next Walk to Defeat ALS is Sunday, October 2, 2011



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May 2009 marked our 5th trip to Washington D.C. for the National ALS Advocacy Day/Public Policy Conference. It was exciting that we played a small part in President Bush signing the ALS Registry Act into law, but we still need more help from Congress. ALS advocates can help change the laws and policies that affect thousands of persons with ALS and their families.

We have met a lot of people who struggle with all aspects of daily living due to ALS. A lot of PALS (persons with ALS) cannot walk, lift their arms to feed themselves, or even have the strength to talk.


While meeting with congressional offices, we hope we made a difference in asking for help to meet the needs of ALS patients. Please join our fight by becoming an advocate. And remember, teens can be advocates as well!




CLICK HERE to find out how you can help STRIKE OUT ALS!